Regular Giving

• An estimated 10,000 people are living with PSP & CBD in the UK, and most of them don’t receive a timely diagnosis or adequate care and support.
• For one in three people, it takes more than a year to be referred to a neurologist by their GP.
• 60% of people living with PSP & CBD initially receive a misdiagnosis. An accurate diagnosis often takes up to three years, by which time many are halfway through their disease life expectancy.
• There is currently no cure for PSP & CBD. Treatment focuses on symptom management through certain medications and multidisciplinary team support.

Why Regular Giving Matters

Life can be challenging for people living with PSP & CBD, their family members, and carers. Our aim at PSPA is to be there for them at every step of their journey so they get the support they need and information they can trust. Your monthly donation ensures we can continue doing this and reach as many people as possible.

Through regular giving, you can provide PSPA with the funds needed to make a real difference. From helping us organise more Support Group meetings to keeping our Helpline open and available to anyone affected by PSP & CBD, as well as funding vital research and ensuring more healthcare professionals have the knowledge and resources to provide better care.

A regular gift also allows you to make a difference in a way that fits in with your personal budget. You can increase, decrease, or cancel your gift at any time.

What’s more, if you are a UK taxpayer, your regular donation is eligible for ‘Gift Aid,’ which means it could be worth up to 25% extra at no cost to you.

Impact of your Regular Gift

A small cost can make a big impact. By setting up a regular donation, regardless of the amount, you are making a positive lasting impact on people living with PSP & CBD, and those who care for them.

How to get started

Setting up a monthly donation to PSPA is simple, flexible, and suitable for all budgets.

• Step 1 – Choose your amount, which could be as little as £3 or any other amount that suits you.
• Step 2 – Set up your regular payment to PSP Association, e.g. direct debit.
• Step 3 – Boost it with Gift Aid. If you’re a UK taxpayer, your donation could be worth 25% more at no extra cost to you.
• Step 4 – Always stay in control. You can increase, decrease, or stop your monthly donation ANYTIME. Just get in touch with us or contact your bank when you want to make a change.

Regular Giver Stories

James

James makes a regular monthly gift to help PSPA fund our services. He became a regular giver and completed several fundraising challenges for PSPA, following his mum’s death from PSP in 2020.

“PSPA stepped in where the medical professionals couldn’t. Dealing with PSP is very isolating because no one has heard about it. Having a dedicated charity that offers insight and understands the condition was really valuable.”

“It’s good to see the charity developing new services. Recently, I sat on a steering group to help inform how the charity could use the lottery funding it had secured. It’s great to hear how the online exercise classes and counselling sessions have emerged from this.” – James Acker

Helen

Helen’s husband, Colin, died of PSP 17 years ago at 76. He was initially diagnosed with Parkinson’s Disease. Colin was a Paediatrician and Helen was a Nurse before retirement. Helen cared for her husband at home until the end, where he died at home, as per his wishes. Helen became a regular giver to PSPA to support the efforts towards finding effective treatments.

“Even 17 years on PSP is still not a well-known or understood condition. I hope that within my lifetime, I see some treatments coming through. For me, making a regular gift is a way of keeping Colin’s legacy alive.”

“Colin was very well respected within the medical community. I think he would approve of me supporting the advancement of medicine, especially in a disease that took so much from him.” – Helen Miller.