Corticobasal Degeneration is a life limiting neurological condition which can progress differently, taking you on very individual paths.
My Path shares experiences of people living with Corticobasal Degeneration to raise awareness of the condition, the symptoms and its unique progression.
You can watch short films below telling three peoples’ Corticobasal Degeneration stories below, and download posters to display in your community.
MY PATH: CORTICOBASAL DEGENERATION
BRUCE CLEVELAND
Bruce and his wife Neda are no strangers to cameras, and you may recognise them from the ITN programme, Inside Neurology: My Unique Brain, we helped produce in 2023.
For My Path, Bruce and Neda talk more about how the delays in receiving a diagnosis impacted their lives and ability to access appropriate care and support.
“I think things could have moved faster if it was on the radar, it could be CBD. He had a lot of the classic symptoms. It was five years to diagnosis. It was very frustrating. Although CBD is terminal and there’s no treatment, having a diagnosis gives you something to hold onto and understand.”
RUTH TILLARD
Ruth has been living with CBD for nine years. Over time, Ruth has lost her ability to walk, talk, and experiences some swallowing problems too.
Ruth’s husband Richard, and her daughter Roxy, detail how the progression of Ruth’s symptoms has impacted their family.
“Every time I saw her; she was quieter and had lost her confidence and wasn’t speaking so clearly. She wasn’t herself. I lost my Mum as she was a very long time ago. It’s kind of like the death of several people, over a period of time.”
BUILDING A PATH TO AWARENESSS
You can help spread awareness of Corticobasal Degeneration in your area in the following ways:
- Share our videos and posters in your community
- Donate to our Understood Appeal
- Share your experience of Corticobasal Degeneration at [email protected]
- Signpost healthcare professionals in your area to our It could be CBD animation
UNDERSTANDING THROUGH RESEARCH
Too much remains unknown about Corticobasal Degeneration.
Help progress understanding of Corticobasal Degeneration. Support our Understood Appeal to fund life-changing research, below.
CONTACT US
If you need support, want to learn more about Corticobasal Degeneration, or plan to help raise awareness of the condition. PSPA is here to help.
Get in touch with our team using the below details:
Helpline: 0300 0110 122
Telephone: 01327 322400
Email: [email protected]
