One of the four main elements of the PSPA Research Strategy is communication.
To help communicate updates this we host online research information events to share current research projects and findings in an accessible way. As well as learning about ongoing research, the sessions allow attendees to ask questions about studies and hear about the outputs from completed projects.
RESEARCH INFORMATION SESSIONS 2025
Research Information Session 2
Our 2nd event of 2025 was held on Thursday 24th July – the recordings are all available on our YouTube channel or by clicking each individual link below.
Dr Annalisa Casarin – ImproveAPS
Professor Sanjay Manohar – Cognitive and Neuropsychiatric profiles in atypical Parkinsonian syndromes
Mimi Tambi – The Queen Square Brain Bank Neurodegenerative Disease Human Nervous Tissue Resource project
Tia Gandhi – Bodily emotion recognition in PSP and Parkinson’s Disease
Aditi Bisen – Gastrostomy Outcomes in atypical Parkinsonian Syndromes
Please email Megan with any questions about the event or if you have a particular area of research you’d like covered in our next session in November researchinfoday@pspassociation.org.uk
Research Information Session 1
The first session was held in February, you can watch each presentation by clicking the links below:
Professor Zane Jaunmuktane & Dr Patrick Cullinane – Discovering Biomarkers and Understanding Tauopathy Complexity
Dr Kat Bowles – Stem cell models to understand the effect of dysfunctional tau in PSP/FTD
Dr Edwin Jabbari – Clinical applications of seed amplification assays for PSP
Riona Fumi – Preliminary Results from the ExPRESS study
Noah Shapiro – Inflammation PET and plasma NFL predict survival in people with PSP
RESEARCH INFORMATION SESSIONS IN 2024
In 2024, to make our research events more accessible we held multiple sessions throughout the year with different themes.
Research Information Session 2
The second session of the year held on the 5th September 2024 focused on research that aims to improve care and symptomatic treatment for people with PSP & CBD. The programme is available to download here.
Recordings of the sessions can be watched below:
Dr Boyd Ghosh – How to provide the best care for people with PSP & CBD
Dr Robert Durcan – Treating symptoms in PSP with noradrenaline
Professor Chrystalina Antoniades – Quantifying PSP using digital technology
Professor Kate Flemming – Palliative Care in progressive neurological illness
Mark Jackson – My Neuro Survey 2024
Research Information Session 1
The first session of the year was held on Thursday 23 May 2024 and focused on research with aims of diagnosing PSP & CBD in a faster and more accurate way. You can read the full programme here.
Recordings of the sessions can be watched below:
Dr Maura Malpetti – Brain scans and blood tests to track inflammation
Prof Dan Smith – Visual Attention: A Potential Cognitive Marker for PSP
Riona Fumi – Diagnosing Parkinson Plus Syndromes Earlier: The ExPRESS Study
Dr Alana Terry – Molecular Imaging of Synaptic Loss in PSP
Dr Edwin Jabbari – Development of a tau seeding assay as an early diagnostic test for PSP & CBD
RESEARCH INFORMATION EVENT 2023
Following the success of our 2021 event, PSPA was excited to hold our second online Research Information Day on Friday 3 February 2023.
During the day, we brought together 200 virtual attendees together including people living with PSP or CBD, carers, researcher and health professionals, to share knowledge, answer questions and raise awareness of PSP & CBD.
Download the programme for the day here.
You can also play back the sessions below:
Session One – Observational studies – what are they for and what have we learned?
Session Two – Causes and cures: how technologies can help
Session Three – Clinical Trials update
Session Four – Care – navigating and improving the health and social care system
Session Five – Patients voices using surveys and focus groups
For further information about the event please email researchinfoday@pspassociation.org.uk
