Experiences of taking part in research

Many of our members have already made the decision to contribute to PSP and CBD research and have shared their experiences with us.

Taking part in PROSPECT

Taking part in PROSPECT

Peter Howlett was diagnosed with CBD in February 2014. He lives with his wife Heather in Devon.   Pete’s first experience of helping to further the medical community’s understanding of CBD was when he was used as an example of the condition in front of around 60 people at Peninsula Medical School. He and Heather …

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Jerry and Liz

Taking part in the PET scanning study at King’s College London

Jerry Witts, a former fast jet pilot in the RAF, was diagnosed with CBD in February 2015, having experienced a growing list of symptoms for the previous five years.   He lives with his wife Liz in Kent and recently decided to enrol in a London brain imaging study being co-ordinated by Dr Flavia Niccolini. …

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Brain donation

Taking Part in Brain Donation

Kathryn Timmons is the group co-ordinator for our Loughborough local group.   Her husband George lived with PSP and generously donated his brain to the Queen Square Brain Bank when he passed away in 2014. Kathryn has decided that she too would like to donate her brain for use as control tissue. She told us …

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