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Update on Care Information

Your Personal Guide to PSP

We know that many of you find ‘Your Personal Guide to PSP’ very beneficial, however the guide is now ready for a review and we are aware that it needs updating. Following feedback we are now considering developing two separate guides, one for people with PSP and CBD and one aimed at people in a caring role. We really want to make sure we provide the right information, to the right people and would really appreciate you taking part in our short survey. Your views are really important and helps us produce useful information for the benefit of people we support.

Following your feedback we will be either keeping the guide as one updated guide or producing two separate guides.

The survey will only take 5 mins of your time. If you feel you would like to help please go to

If you are not able to complete the survey online please contact the helpline on 0300 0110 122.

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