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PSP & CBD Awareness Week 2020

Our PSP & CBD Awareness Week has been rescheduled to take place next week, 20 to 26 July.

Each day during the week, we will be hosting different online activities and we would love for you to join us to help increase awareness PSPS & CBD as well as improve understanding of the symptoms.

The full programme for the week is as follows:

Monday 20 July 2pm on Facebook ‘Swallow’ film watch party with Freya Hannan-Mill and Ethan Graham.

Tuesday 21 July PSPA supporter, Georgie Irwin, leads a social media take over on the Rare Revolution Magazine platforms.

Wednesday 22 July 2pm ‘Ask the experts’ Q&A session for people living with PSP & CBD, with Dr Boyd Ghosh and PS Coordinator and Specialist Physiotherapist Jade Donnelly. Please pre-book your place by emailing

Thursday 23 July PSPA Online Summer Raffle launch

Friday 24 July PSPA supporter, Georgie Irwin, shares her tips for fundraising and raising awareness

Saturday 25 July Red flag awareness – how you can raise awareness of PSP & CBD with healthcare professionals

Sunday 26 July Join the fight against misdiagnosis – how you can raise awareness of PSP & CBD in Parliament. Also a second ‘Swallow’ film watch party will take place with Freya Hannan-Mills at 6pm.

Throughout the week we will also be sharing personal experiences of PSP & CBD. If you would like to share your experience, please email

Celebrating PSPA Volunteers

This Volunteers Week, 1 to 7 June 2022, we want…

Wear Ed’s Lace to…

Wear Ed’s Lace to raise awareness of PSP & CBD.

Check out our Jubilee…

Celebrate the Queen’s Jubilee whilst raising awareness of PSP & CBD with a PSPA Jubilee Tea Party

PSPA invites applications for…

Learn more about the PSPA Small Research Grants and how to apply.