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Latest guidance on COVID-19 and PSP & CBD

On 19 July COVID-19 restrictions and guidance around social distancing began to lift across the UK.

Although many welcome more freedom, we understand others are apprehensive about what this could mean if you are living with or have a loved one affected by PSP or CBD.


If you are living with PSP or CBD, are a carer or a family member of someone who is, please do continue to follow Government guidance on how to stay safe and help stop the spread of COVID-19. Guidance for your area can be found at

Northern Ireland

Additional measures for people living with PSP & CBD have not been issued, however in order to feel safe and comfortable you may still want to consider the following:

  • Avoiding busy places during peak times such as rush hour or lunchtimes
  • Continuing to meet family and friends outdoors where possible
  • Gradually increasing contact with people outside of your household
  • Asking visitors to maintain a two meter distance and wear face coverings if possible
  • Continue to wear face coverings in public spaces and practice good hand hygiene

Caring for a family member or friend

People caring for a family member or friend diagnosed with PSP or CBD may also want to consider

  • Working from home if you can
  • Limiting contact with people outside of your household
  • Maintaining social distancing when out
  • Washing your hands and clothes on a regular basis
  • Letting air circulate via open windows and doors whenever possible
  • Planning contingency care support in case you fall ill

Guidance for the clinically vulnerable

Anyone considered to be clinically vulnerable due to an existing health condition will have received a letter from the NHS or your GP, advising you to shield during the pandemic. Although this guidance lifted in April, additional information for people considered clinically vulnerable is available at

Northern Ireland

PSPA Support

If you are concerned about restrictions opening and you would like to speak to someone, please contact the Helpline 9am to 9pm, Monday to Friday, on  0300 0110 122 or email the team here.

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