The PSPA Youth Support Group aims to give young people who care for or have a loved one living with PSP or CBD, a place to come together to chat, share experiences and support each other.
The group will is led by PSPA Volunteer Kathryn Embree, whose dad was diagnosed with PSP when she was 16 years old.
Kathryn coordinates regular group meetings via Zoom as well as administers a closed and private Facebook group, where group members can stay in touch and chat in between meetings.
Access to the Facebook group is limited and invite only. Kathryn, with support from PSPA staff members, will regularly administer and monitor content within the office hours or 9am to 5pm.
Youth Support Group Meetings will be taking place via Zoom, on the following dates:
- Wednesday 24 August – 7pm
- Sunday 25 September – 6.30pm
- Wednesday 26 October – 7pm
- Sunday 27 November – 6.30pm
- Wednesday 14 December – 7pm
To join the Youth Support Group and to receive regular updates about meetings, please email firstname.lastname@example.org
Once you have completed the Youth Support Group Join Us form, a link for the relevant Facebook group, for ages eight to 16 years old and 17 to 30 years old, will be emailed across along with the group’s Code of Conduct.
Our Youth Support Service, including the PSPA Closed Facebook page are a place for you to share your thoughts, feelings and any questions you have. For this reason, we will not usually share what is said in the groups or anything you talk to us about.
There may be times when we will decide to break confidentiality to keep you or another member of the group safe. We will do this if we are worried about you or someone else. We will always try and speak to you first, but we may not be able to. If we are very worried about you, we may contact the emergency contact you give us in order to keep you safe.
To stay safe we ask that you do not share any personal information – such as your address, telephone number or bank information on Facebook or any other social media groups. Don’t forget that once you post something on social media it can be saved or shared by others.
To join the PSPA Closed Facbook page please complete the following form:
If you are aged between 8 – 17 years please provide emergency contact details.
Emergency contact details
Please note that we will need to get in touch with your emergency contact before we accept your follow request if you are under 13 years of age.