How to contact us:
Telephone: 0300 0110 122
“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and I.”
We offer a confidential telephone and email service . We are open Monday to Friday from 9am-5pm and 7pm-9pm. please leave a message on our answerphone if we are unavailable and we will get back to you. Telephone calls are charged at the cost of a local rate call (depending on your service provider). If you are calling from a mobile or a landline that has inclusive minutes, your call will be free (the call will use your allocated minutes)
The helpline can provide :
- Information on all aspects of living with PSP and CBD, such as symptom management, benefits and entitlements and everyday living.
- Emotional and practical support
- Contact details for local support , which may include a Volunteer Support Worker or a local group
- Information about how the PSP Association can support you
- Information about health and social care and how to access these services
- Signposting to other sources of information
Our Volunteer Support Workers perform a vital role in supporting people affected by PSP and CBD – both those with the condition and those close to them. All our Support Workers are volunteers who have been carefully selected and have undergone a thorough training programme. Our Support Workers are based in the local community and usually have contact with people over the phone, via e-mail or will visit them in their own home.
Our local groups provide an invaluable part of the PSP Association (PSPA) service and make a huge difference to those who attend. Their aim is to provide a welcoming and friendly place for people affected by PSP & CBD, including familiy and friends, to meet up on a regular basis to share information and just chat .
Our Family and Friends Days provide an informal opportunity for people living with PSP and CBD, their families and those who care for them to come together to learn more about research and care , the work of PSPA and to meet others affected by both conditions.
We publish a number of information sheets and guides to help you through your journey with PSP or CBD.
Our publications are updated on a regular basis and go through a thorough review process so that you can be confident the information is accurate and trustworthy.
Most of our publications are downloadable however if you would prefer a printed format please contact us .
HealthUnlocked, our online forum, provides the perfect opportunity to share experiences and support each other with the challenges of living with PSP and CBD.