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There are thousands of people around the UK living with PSP and CBD. Here we share a few of their stories.

 

Austin

Austin’s story

Austin, 78, was something of a local hero in his native Belfast, having played rugby for Ulster and been a member of the Irish rugby squad. He has been living with PSP for over ten years and lives with his wife Betty in County Down, Northern Ireland. Here, Austin tells us his story.   I …

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Chris’ story

Chris lives in Orpington, South London with his wife Margaret and was diagnosed with PSP in March 2015. Chris is a member of barber shop chorus ‘The Kentones’ and finds that singing with the group has a really positive impact.   “The Kentones has a 40 year history and the current president was a founding …

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Lynette

Lynette’s story

Lynette, from Wokingham, explains how she copes with daily life with CBD   My big shock began in June 2016. Two years prior to my diagnosis I noticed strange things happening with my right hand. I began to drop things, cutting vegetables became a problem, putting on jewellery and certain clothes was difficult.   My GP …

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Enjoying sundowners Mick  far left

Mick’s story

  Mick, from Somerset, hasn’t let CBD stop him from enjoying a safari in South Africa.   In August 2014, following several visits to various consultants and an MRI scan, I was diagnosed with CPD.   My wife Clare had been making enquiries about holidays and top of her ‘bucket list’ was a safari holiday, …

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Theresa and Jon Battershill

Theresa’s story

  Theresa, 57, spent many years volunteering with organisations including Oxfam, DIAL Kent, and her local volunteer bureau.   Since becoming unwell, and eventually receiving a diagnosis of PSP in 2014, she enjoys seeing her sons David and Stephen progress in life and her crafty hobbies.  She explains:   Where do I begin. I think …

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