Publications for those affected by PSP and CBD
We publish a number of information sheets and guides to help you through your journey with PSP or CBD.
Our publications are updated on a regular basis and go through a thorough review process so that you can be confident the information is accurate and trustworthy.
Most of our publications are downloadable however if you would prefer a printed format please contact our Helpline and Information Service
Your Personal Guide to PSP
This is a ready reference tool for those living with, or caring for someone with, PSP or CBD. The guide comes in 4 sections allowing you to choose how much information you want to know.
All about me
A leaflet for those receiving professional care at home, in hospital, respite care, nursing home, or a care home. Use it to inform staff of an individual’s needs, preferences, likes and dislikes.
An Introduction to PSP and CBD
A generic leaflet about the conditions.
An information sheet to help inform decisions about alternative methods of eating and drinking
An information sheet to help you plan ahead and record your wishes for future care and treatment. (Note: Designed to be read alongside material produced by Compassion In Dying – email email@example.com for information)
A credit card sized fact card which includes PSPA contact details and key facts about PSP and CBD.
Our fridge magnet has contact details of our PSPA helpline
PSP commonly affects the eyes. Problems with vertical gaze may be helped by using specialist prism glasses that are available free of charge for those living in the UK Please contact the helpline to request a pair. .For people living overeas prism glasses can be purchased from Norville.co.uk
You can also download and view the latest issue of our magazine PSP Matters