For carers

Publications for those affected by PSP and CBD

We publish a number of information sheets and guides to help you through your journey with PSP or CBD.

Our publications are updated on a regular basis and go through a thorough review process so that you can be confident the information is accurate and trustworthy.


Most of our publications are downloadable however if you would prefer a printed format please contact our Helpline and Information Service


 Your Personal Guide to PSP

This is a ready reference tool for those living with, or caring for someone with, PSP or CBD.  The guide comes in 4 sections allowing you to choose how much information you want to know.


All about me

A leaflet for those receiving professional care at home, in hospital,  respite care, nursing home, or a care home. Use it to inform staff of an individual’s needs, preferences, likes and dislikes.

All About Me and Guidance Notes


An Introduction to PSP and CBD

A generic leaflet about the conditions.

An Introduction to PSP and CBD


Information sheets

Alternative methods of feeding when you have PSP

An information sheet to help inform decisions about alternative methods of eating and drinking

Brain Donation for Research

An information sheet providing information about brain tissue donation

NHS Continuing Healthcare Funding

An information sheet to provide you with an understanding of NHS Continuing Healthcare

Advance decision guidance notes for people living with PSP and CBD

An information sheet to help you plan ahead and record your wishes for future care and treatment. (Note: Designed to be read alongside material produced by Compassion In Dying – email for information)


Fact Card

A credit card sized fact card which includes PSPA contact details and key facts about PSP and CBD.

Fridge Magnet

Our fridge magnet has contact details of our PSPA helpline

Prism Glasses

PSP commonly affects the eyes. Problems with vertical gaze may be helped by using specialist prism glasses that are available free of charge for those living in the UK   Please contact the helpline to request a pair. .For people living overeas prism glasses can be purchased from


PSP Matters

You can also download and view the latest issue of our magazine PSP Matters