What can I do?
From helping out at a local group or answering calls on our helpline, there are plenty of ways to get involved with PSPA.
Could you give people a warm welcome?
Our local group volunteers provide a welcoming and friendly place for people affected by PSP or CBD, including family and friends, to meet up and share experiences, information and friendship.
The meetings are organised by our Local Group Coordinators, who find a suitable venue, arrange regular meetings and make sure everyone is made welcome.
With many groups, our coordinators are supported by Local Group Helpers who can help out during meetings by organising refreshments, sending invitations and chatting to people during the meeting.
Helping to keep in touch
For many people, living with PSP or CBD can be an isolating experience. Although we have a network of local groups dotted around the country, not everyone can get to them or want this kind of interaction. Our Support Worker project offers regular contact either by phone, email or home visits.
Support Workers keep in touch with people living with PSP and CBD (including families and carers) on an ongoing basis. They offer confidential emotional support and accurate information to enable people to make informed choices.
Offering a listening ear
Volunteer Helpline Assistants and Volunteer Helpline Office Assistants provide a vital service giving information and support to people calling our Helpline service either home-based during the evening or office-based at our Towcester head office during the day. Each volunteer is trained to offer a supportive ‘ear’ to callers including people living with PSP, family members, health and social care staff and members of the public.
Help us to educate and raise awareness of PSP and CBD
Are you enthusiastic and enjoy speaking to groups? Our Education and Awareness role could be perfect for you!
Because PSP and CBD are rare and little known, we have developed this role to raise awareness and understanding in local communities.
Volunteers taking up this opportunity will deliver short sessions with the aim of educating and raising awareness with health and social care professionals and other interested groups.