Our Volunteer Support Workers  perform a vital role in supporting people affected by PSP and CBD – both those with the condition and those close to them.

All our Support Workers  are volunteers who have been carefully selected and have undergone a thorough training programme. Our  Support Workers  are based in the local community and  usually have contact with people over the phone, via e-mail or will visit them in their own home.


Following a diagnosis of PSP and CBD  it can sometimes be difficult for people to know where to turn. Our Support Workers can give you the opportunity to talk about your feelings and let you know what help is available in your area. This can help to reduce the sense of isolation some people affected by the conditions can experience.

This is a relatively new service therefore we do not have cover countrywide as yet . Please contact the helpline if you would to access the service or know more about it .