Carers Stories

There are thousands of people around the UK caring for loved ones living with PSP and CBD. Here we share a few of their stories.

Amy Lane

Amy’s Story

Grandad had always been well spoken, articulate, very private and fiercely independent.  He had lived on his own for 35 years, after bringing my Dad up almost single handed from the age of six, spending his weekends with his long-term partner, Marion. His routine was always the same; Tuesday with his sister, and Friday or …

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Lesley and Mike

Lesley’s Story

The year 2007 heralded, we thought, a promising new start. Early retirement for Mike. Our two children were through University.  It was now our time, at last! We couldn’t wait! Early spring, and Mike woke me one morning to say that he had fallen backwards down the stairs.  We joked about his clumsiness in slipping. …

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Maureen Horne

Maureen’s Story

Maureen Horne, from Harpenden, shares this honest account of caring for her late husband Gordon, who lived with PSP.   Someone once said there are four kinds of people in the world: Those who carers Those who have been carers Those who will become carers And those who will be cared for And at different …

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Peter and Margaret

Peter’s Story

Peter Grant, 81, cares for his wife Margaret, 78, who lives with PSP. He explains how life is a little easier since professional carers started to visit their Driffield home.   Margaret was diagnosed with PSP in 2010. Before that we’d noticed she found it difficult to judge distance. She would drop the pans on …

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