For carers

You may not think of yourself as a carer as such, but simply as a caring partner, husband, wife, son, daughter or friend.

But recognising your role as a carer may mean you can claim benefits and access health and social care services that can help you.

Caring for someone with PSP or CBD is likely to be a new role for you and one you never expected to take on.

It will take time to adjust. There may be times when you feel confident in your new role and moments when you worry that you’re not doing things right.

Caring can be rewarding but it can also be tiring. Remember we are here to support you in your role of carer.

Verna Gill from Coventry is raising awareness for PSP Awareness Week. Her father Bob Burke suffers from the condition which i caused by progressive death of nerve cells in the brain.

Looking After Yourself

Caring for someone can be rewarding but it can also be very tiring, putting a lot of demand on your physical and emotional energy. When you are simply coping day to day and responding to the needs of others, it’s easy to forget your own health needs and find the energy to look after yourself. …

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Carer at support group

Support For You

We are committed to ensuring that family and unpaid carers of all ages who support people with PSP or CBD have access to a network of support and high quality information.   This can be provided by PSPA or through other organisations to help carers to achieve and maintain quality of life for themselves and …

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Online Forum

Our forum HealthUnlocked is a safe place for people affected by PSP and CBD to share experiences and support each other with the challenges of living with the conditions.

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Carers assessments

Carer’s Assessments

All carers have a legal right to an assessment of their own needs if they are looking after a relative or friend who cannot manage without their help. A carer’s assessment is an opportunity to let the local social services department know about the things that could make caring easier for you and help balance …

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Info and support index

Useful Organisations

Links to other organisations that provide information on a range of relevant subjects to PSP and CBD.

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Carers Stories

Carer’s Stories

There are thousands of people around the UK caring for loved ones living with PSP and CBD. Here we share a few of their stories.

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