Our draft strategy – what would make a difference to you?

This is an exciting time for PSPA. In the winter edition of PSP Matters, we stated that we wanted to develop a strategy that set out our goals for the next three years. Our aim was to reach more people living with PSP & CBD than ever before and provide support for everyone affected by …


Scottish Fellowship study ready to recruit participants

PSPA and the office of the Scottish Chief Scientist are delighted that our jointly funded research study is ready to begin recruiting people with PSP and CBD from across Scotland. The study, entitled “Improving diagnostic and care pathways in PSP and CBD” is being conducted by Dr Diane Swallow, a Neurology Registrar and Clinical Research …


PSP Clinical Trial – recruitment now closed

UPDATE: The international clinical trial of a potential new treatment for Progressive Supranuclear Palsy (PSP), known as the PASSPORT trial, has now closed recruitment to new participants. Preliminary results are expected in autumn 2019. We will share any news as soon as we are able. The phase II trial involves a new intravenous drug which …


Exciting News for Health Professionals…

New diagnostic criteria published   A new set of clinical guidelines for the diagnosis of PSP has been published in the journal “Movement Disorders”. The guidelines were developed by an international team of leading PSP experts, including PROSPECT principal investigators Prof Huw Morris and Prof James Rowe. Thanks to your generous support, we were able …

Information & Support

Awareness Week 15 – 21 May 2017

For people with PSP getting a correct diagnosis is challenging, with 30%* incorrectly diagnosed with Parkinson’s. Even after referral to a neurologist more than a third (35%) had to wait over a year for a confirmed diagnosis, with 17% having to wait more than two years.

Appeal Research News

Make a lasting difference

Making a regular donation to PSPA ensures we have a steady income and gives us the confidence to forward plan everything we do. Your generosity enables us to commit to funding vital research into PSP and CBD and to continue providing information and support to those affected by the conditions through our helpline and local …


New CEO Appointed

The Progressive Supranuclear Palsy Association (PSPA) has announced Andrew Symons as its new Chief Executive.  Andrew will take up his position in April, when he will succeed interim Chief Executive, John Chandler.