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Sara Koe Research Fellowship – Dr Edwin Jabbari

  Dr Edwin Jabbari has recently finishing his general medical training. To kick start his career in neurology, he has now taken up the post of Sara Koe Research Fellow and will undertake a three year study funded by PSPA. In his first blog, Ed tells us about his first few months in post and plans …

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European Conference on Rare Diseases – Fiona McLaughlin

It was during a weekend away in Edinburgh 10 years ago that we began to realise that whatever was going on with my mum was a bit more than double vision. Outside her own setting, and with extended contact, my brother and I experienced the odd decision making, the lack of independence, and the mobility …

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A Research Dragons’ Den – Dr Lou Wiblin

In her latest post, Lou explains why patients’ views matters so much to researchers and tells us about her experiences in a research Dragons’ Den! Things have been moving fast in my Quality of Life in PSP and MSA research project. Responding to the feedback from the PSP Association patient group meeting and feedback from …

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New Research Project – Dr Lou Wiblin

In her first guest blog, Lou introduces us to her research activities and explains what goes on behind the scenes. Hello everyone! I am a registrar in neurology based in the North East of England. My particular interests are movement disorders, especially Progressive Supranuclear Palsy and Multiple System Atrophy (known as subtypes of Parkinson’s disease) …

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1 Month to go to the London Marathon – Richard Piggford

So, here we go! Four Sunday’s left before the big day. I completed the North London half marathon yesterday in 1hr 47minutes – A new PB, maybe all the training is paying off! Was great to cross the finish line with a close friend Oli Palmer. Of the four Sunday’ remaining I face my two …

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Tackling Bob’s sight impairment – Carla Bancroft

In her latest blog, Carla explains how the family have tackled the issue of Bob’s sight impairment to make life a little easier and more pleasurable. With the multiple changes that we face on this journey we are all taking, it is difficult to know what to try and address first. As we all know, …

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Preparation for the London Marathon – Richard Piggford

Teacher Richard Piggford, 25, from London, is taking part in this year’s London Marathon, and is hoping to raise as much as possible for PSPA. He is running in memory of Joyce Watson, the mother of his former university lecturer Steve Watson. Joyce sadly passed away on Christmas Day 2015 after being diagnosed with PSP …

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Bob’s latest adventures as a PSP research participant – Carla Bancroft

In her latest blog post, Carla gives us an update on Bob’s latest adventures as a PSP research participant. Belated New Year Greetings all, and hope you had a great Christmas. Just thought we’d update you on Bobs latest part of his journey as a ‘lab rat’ for the NIMROD study. As you know taking …

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Working on Prof James Rowe’s PSP Association-funded project – Patricia Vazquez Rodriguez

Patricia Vazquez Rodriguez is working on Prof James Rowe’s PSP Association-funded project, carrying out special brain scans to visualise the disease-associated protein tau in people with PSP. In her first guest blog, Patricia introduces herself and tells us about life in the research world. Hola, My name is Patricia but I prefer to be called Patri …