Information & Support

Reorganisation of our Information & Support Services

You just need one number for support – our Helpline

We are reorganising our Information and Support Services, to help us focus our efforts on supporting even more people with PSP & CBD. Part of this work includes making our Helpline the single point of contact for people affected by both conditions.

Through our 2016 survey for people with PSP & CBD, we have seen the impact our Helpline has on people who have used the service. By being centrally located, our Helpline is able to provide consistent and equitable support for all our members in the most cost effective way possible. As part of the restructure, we will also be simplifying our processes so people affected by PSP & CBD will  have just one point of contact in the future.

We are increasing the Helpline’s capacity by creating two new roles. Both the new and existing roles will become Helpline Care Navigators and will provide people with PSP & CBD a named  contact to help ensure they are referred into all relevant local services. Inevitably, centralising this service means reducing our regionally based staff numbers, including the Specialist Care Adviser role.

Andrew Symons, Chief Executive said:

“We are working hard to minimise the impact of the restructure by removing vacant roles and redeploying staff where possible to the new Care Navigator posts in the Helpline. “In a restructure like this there are always difficult decisions to  make and these will be handled sensitively and respectfully – but we need to have a sustainable cost base going forward, and to demonstrate to our supporters that we are making the best use of their donations. Our focus must always be  on how we can use our resources most effectively for the people we are here to support.”

Alongside changes in Information and Support Services, we will be aiming to recruit more volunteer support worker roles, so that they can provide  local support to people with PSP & CBD.

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  1. I would love to order past issues of the PSP MATTERS magazine, but don’t know how to access the pay pal to order. I live in North Carolina in the USA, my Mother, Rebecca was diagnosed with PSP in June 2017, and I llove your site! Beats anything I have found here in the states.

    Sharon Hunt.

    1. Hi Sharon, thanks for your message. Our past issues are available to download from our website I don’t think there is a way to order past issues, but if you let me know which ones you would like, I can check if we have them in stock and let you know what the postage would cost and we can take it from there. I hope this helps. You can email me direct at Best wishes, Debbie