The PIPPIN (Pick’s disease and Progressive Supranuclear Palsy, prevalence and incidence) study is a two year research project open to everyone with PSP and CBD (and a handful of other conditions) living in Cambridgeshire or Norfolk.

Getting better care and support from health services and research for new treatments, all need accurate information on how common these illnesses are. The PIPPIN study will provide this and also investigate very simple but important questions, like what causes some of the common symptoms.

If you or someone you know is interested in finding out more about the study and how to participate please contact Dr. Ian Coyle-Gilchrist, Clinical Research Fellow, University of Cambridge.

Telephone: 01223 760697

Email: ian.coyle-gilchrist@nhs.net

There is no obligation to take part or have other tests. Dr. Ian Coyle-Gilchrist will write back with more information so that you or the person living with PSP or CBD can decide whether to take part.

Any information you provide will be kept confidential and only used by members of the PIPPIN research team.

For further information on other research projects into PSP, and to view our fundamental research goals, visit our Research Overview Pages.